“Epidermolysis Bullosa (EB) is the cruellest disease known to mankind. It’s horrific it’s horrendous and is often referred to as the worst disease you’ve never heard of"! 

Cure EB Foundation is a non-profit organisation dedicated to finding a cure for Epidermolysis Bullosa (EB) and supporting those affected by this rare and debilitating genetic skin condition. EB comprises a set of rare genetic disorders affecting the skin, the body's largest organ. Those with EB lack crucial proteins, leading to skin tearing, blistering, and shearing, causing pain, disfigurement, and persistent wounds. 

Unfortunately, there is no cure for EB. Supportive care involves daily wound care, bandaging, and pain management. At 

Cure EB Foundation, our mission is clear – We must find a cure. Scientific breakthroughs buoy our belief that a cure is not a matter of 'if', but 'when'.Your support will bring the worlds greatest minds together to develop a cure for eb.