Lynch Syndrome Australia (LSA) is the only charity in Australia advocating for Lynch syndrome, a hereditary cancer causing syndrome. It is believed that 1:280 persons may be affected yet only 5% have been diagnosed.
With Lynch syndrome there is a lifetime cancer risk of up to 80% for colon cancer. For women, a lifetime risk of up to 60% for endometrial cancer. Other cancers at a much higher risk than the general population include, but are not limited to, ovarian, stomach, urinary tract, pancreatic, prostate and brain. Whilst other cancer organisations concentrate on specific cancers, LSA concentrates on a whole genetic condition. People affected have a lifetime risk of many different cancers.
Everyone at LSA is a volunteer. We are five passionate women, all with full-time jobs. After a full day at work, we then come home get our families sorted and then take on LSA putting more hours in, working from our own homes after hours and on weekends. Fighting for a cause that has personally touched our lives. We are not a big corporation, we don’t yet have a nationally recognised ribbon day and donations are small. We achieve so much with so little that we have.