We are the leading non-profit patient advocacy organization, dedicated to improving the lives of children, adults and families affected by SYNGAP1. Our international outreach for Syngap children gathers critical information needed to drive research towards more immediate therapeutic solutions. Our goal is to improve the quality of life for people...

CDH International raises awareness, funds research and support patient families affected by Congenital Diaphragmatic Hernia in 70 countries.

CURED Educates, Raises Awareness, Advocates and raises funds to aid in medical research for all those patients suffering from Eosinophilic Diseases. CURED is an all volunteer charity and donates 100%...

PRISMS provides information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsors research and fosters partnerships with professionals to increase awareness and understanding of SMS.

Accelerates research towards treatments for celiac disease

AKF fights kidney disease with programs supporting early detection, disease management, innovation and clinical research, advocacy, and financial assistance.