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We are the leading non-profit patient advocacy organization, dedicated to improving the lives of children, adults and families affected by SYNGAP1. Our international outreach for Syngap children gathers critical information needed to drive research towards more immediate therapeutic solutions. Our goal is to improve the quality of life for people...
CDH International raises awareness, funds research and support patient families affected by Congenital Diaphragmatic Hernia in 70 countries.
Tandem is a perinatal hub for a 7-county radius that provides comprehensive and accessible perinatal supportive services. The IN Maternal Mortality Review Committee recommends health organizations and communities increase access to doulas, case management, and mental health supports. Our innovative Postpartum House model is the first of its kind in...
The mission of the Bobby Jones Chiari & Syringomyelia Foundation is to advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders. The Chiari & Syringomyelia Foundation is a non-profit organization that was founded in 2007. In 2019, the...
HeartSense is transforming how we detect and treat heart disease—bringing early diagnosis to communities that need it most.As a 501(c)(3) nonprofit, we provide free heart screenings using AI-powered stethoscopes and portable medical devices. Since 2021, we've screened over 2,750 individuals at more than 130 community events, identifying hundreds of heart...
PRISMS provides information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsors research and fosters partnerships with professionals to increase awareness and understanding of SMS.
Accelerates research towards treatments for celiac disease
AKF fights kidney disease with programs supporting early detection, disease management, innovation and clinical research, advocacy, and financial assistance.