Jack's Butterflies is for children and their families who have been affected by a Rare Disease and those who are so rare that they remain undiagnosed. We aim to provide many different services to help families along their journey, food and care packages for parents while their child is admitted to hospital. We aim to run regular support groups to help parents and siblings cope with learning to live their lives when they have a child who has a life limiting Rare Disease. We aim to create moments so when families look back on their time with their child, it is not always profound sadness. We can't change what has happened but we can make the journey a little easier and help our families create happy and wonderful memories to hold on to in among the sad and dark days.