Williams Syndrome Association
About us
Williams syndrome (WS) is a genetic condition that affects approximately 30,000 individuals in the United States. It is present at birth, can affect anyone and is characterized by medical problems, including life-threatening cardiovascular disease, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.
Children with WS need ongoing medical care and early interventions. As they grow, individuals struggle with spatial relations, numbers, and abstract reasoning. Executive functionin deficits make daily tasks a challenge. As adults, most people with Williams syndrome will need supportive housing to live to their fullest potential.
The Williams Syndrome Association advances the interests of all individuals with Williams syndrome throughout their lifespan by providing programming and resources, supporting research, promoting partnerships and connections, and ensuring that the infrastructure of the organization has the capacity to lead our community toward its goals.
Our vision is that all individuals with Williams syndrome have the support they need throughout their lifespan to live healthy, self-directed, productive, and meaningful lives. We believe that in order to achieve this vision, individuals with Williams syndrome must be fully included in educational, work, and community settings.
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