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About us
Emily's Star was formed in 2012 in memory of Emily Elizabeth who was born with Edwards Syndrome & loved for 26 wonderful days.
The charity in her memory sets out to do the following:
- To grant wishes to families who have a child or children with any life limiting or life
threatening illness & are supported by a Children with Complex needs nursing team
within Milton Keynes. We support children from birth until 25 years old.
Our wishes are to help families make memories & we carry this out in various ways.
-To raise awareness of Trisomy 18 also known as Edwards Syndrome, the UK's
second most common syndrome.
We also wish to increase the use of the wording "life limiting" when a Trisomy 18
diagnosis is given instead of "incompatible with life"
- To provide neonatal boxes to Milton Keynes neonatal unit, which include items for
both mum and premature or underweight babies. These boxes are called "Emily's gift".
We also provide Mini Packs to any baby currently in a UK Neonatal unit. These can be ordered on through our website.
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March 2026 Grants Round
This grant round we are giving Ā£17,500 to the Top #10 UK and Irish Charities. Vote and support the Charities you love today and help them share in grants on 31 Mar 2026 7:00PM.
