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Emily's Star
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Emily's Star

About us

Emily's Star was formed in 2012 in memory of Emily Elizabeth who was born with Edwards Syndrome & loved for 26 wonderful days.

The charity in her memory sets out to do the following:

- To grant wishes to families who have a child or children with any life limiting or life

threatening illness & are supported by a Children with Complex needs nursing team

within Milton Keynes. We support children from birth until 25 years old.

Our wishes are to help families make memories & we carry this out in various ways.

-To raise awareness of Trisomy 18 also known as Edwards Syndrome, the UK's

second most common syndrome.

We also wish to increase the use of the wording "life limiting" when a Trisomy 18

diagnosis is given instead of "incompatible with life"

- To provide neonatal boxes to Milton Keynes neonatal unit, which include items for

both mum and premature or underweight babies. These boxes are called "Emily's gift".

We also provide Mini Packs to any baby currently in a UK Neonatal unit. These can be ordered on through our website.

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