The Irish ME/CFS Association is a national organisation that strives to improve the lives of people affected by ME (Myalgic Encephalomyelitis)/CFS (Chronic Fatigue Syndrome), their carers, families and friends. We are a low-cost charity run by volunteers from their homes. Our activities include: regular newsletters and e-newsletters with information of different sorts from around the world; meetings with international speakers and documentary screenings around Ireland; contact lists; awareness-raising (especially through the media); various medical educational initiatives such as webinars and mailouts; fundraising for research and other services; etc. This painful and disabling chronic organic disease, which often leaves sufferers house-bound, is recognised by the WHO yet those affected often have difficulty getting a diagnosis and benefits and supports because of ignorance and ill-informed attitudes.