Hope 4 ME & Fibro N.I., is a non-profit charity, run entirely by volunteer patients and their family members. . We do not receive any government core funding, and rely on the generosity and fundraising efforts of our members and supporters.
Many members report diagnoses of ME, Fibromyalgia, Chronic Fatigue Syndrome, Post Viral Fatigue, or a combination of all. Symptoms can overlap between these and other conditions, making diagnosis difficult, even leading to misdiagnoses. A lack of education and awareness amongst medical and other healthcare professionals, often leads to poor patient experience and management. The charity offers support and information for this entire patient group, plus Long Covid patients with similar symptoms following ‘mild’ SARS-CoV-2 infections.
Our campaign for specialist NHS services in N.I., includes: hosting annual, educational programmes for medical professionals, medical students; providing free information packs for healthcare providers; running various educational sessions for healthcare professionals.
Patients support offers: twice-weekly guided breathing and meditation classes; coffee meetings; weekly art and craft classes; monthly meetings (zoom) with specialist speakers - first Tuesday each month at 7pm.
Ongoing projects: developing an educational VR Experience for GP surgeries; designing ME, and Fibromyalgia Profiles for patient symptom management, in an App.
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