STXBP1 Foundation is the only nonprofit of its kind which is focused on advocacy, driving research, and providing our families and their physicians with information and resources. We believe that through our work, we are leading the charge towards improved therapies and ultimately a cure for STXBP1 Encephalopathy. We plan to work together with researchers and medical professionals to identify and fund cutting edge research while challenging scientists worldwide to collaborate and innovate in pursuit of this goal. We are dedicated to providing families with tools to help them understand the disease. We will advocate to improve early detection of STXBP1. Our commitment is unrelenting.