Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) Cover Photo
RSDSA's mission is to provide support, education, and hope to everyone affected by CRPS while we drive research to develop better treatment and a cure. Complex Regional Pain Syndrome (CRPS) is a neuroinflammatory chronic pain disorder whose pain is rated at the highest on the McGill Pain Index- higher than natural childbirth or amputation of a digit. It is a rare disease (prevalence less than 200,000) which occurs after a sprain, fracture, crush injury, or surgery. Unless diagnosed early and treated appropriately, it can become chronic and incredibly debilitating. Individuals who develop CRPS must see an average of five medical professionals before receiving the diagnosis because there is not a gold diagnostic standard and the tell-tale symptoms during CRPS’s onset often disappear. RSDSA is guided by this statement: We serve each person as perfectly as we can, knowing that this may be the only opportunity that we have to do this.” Our goal is to guide individuals on how to build an interdisciplinary treatment team to reduce their relentless persistent pain (felt 24 hours/7 days a week) while restoring function. We also fund CRPS research as only 2 % of all pain research dollars are invested in pain research.

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