Every voice matters. Every life counts. Your support can change everything.

Rare Disorders NZ is the only umbrella organisation representing all 300,000 New Zealanders living with rare conditions – from childhood cancers to genetic disorders that affect just a handful of families. We unite over 150 disorder-specific support groups under one powerful, collective voice.

When families receive a devastating diagnosis, we're their lifeline. We connect them to specialised support groups, help navigate the health system and other services, and provide helpful information. But we do more than support – we fight.

We successfully advocated for New Zealand's first ever Rare Disorders Strategy, which lays the foundation for improving how our health system responds to rare conditions. We advocate for equitable access to life-saving treatments, push for faster diagnoses, and ensure rare voices are heard in policy decisions.

With your support, 300,000 Kiwis have a place to turn to for support. Every dollar you donate amplifies our advocacy, strengthens our support networks, and brings us closer to a healthcare system that works for everyone – no matter how rare their condition.

Join us. Because rare doesn't mean forgotten.