Muscular Dystrophy Association Of NSW
About us
Every person with a neuromuscular condition should be able to live the life they choose!
We believe that people living with neuromuscular conditions have the same rights as others to live the life they choose; have relationships, work, enjoy hobbies and interests and live a life free from abuse or exploitation.
At Muscular Dystrophy NSW, our mission is to empower, connect and support people with neuromuscular conditions, and be an effective advocate for the neuromuscular community.
We achieve this by providing:
NDIS funded support coordination for clients with neuromuscular conditions
Events that bring people with neuromuscular conditions together, and/or their families, like our popular camps for kids, short stays for adults and peer support groups
Up-to-date and accurate information for people with neuromuscular conditions and their families
Programs such as the Duke of Edinburgh Award that empower our community to build strength and reach their potential
A strong commitment to research into treatments for neuromuscular conditions, raising funds to sponsor individual researchers and research institutions
An annual Neuromuscular Information and Research day, which provides an opportunity for learning and questions – connecting people living with neuromuscular conditions with researchers, medical and allied health professionals
Training to educate health professionals, service providers and students about neuromuscular conditions
Opportunities to help raise much needed funds to support our community through MDNSW programs and services
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