In 1993, three new parents learned that their first-born sons had Fragile X syndrome.

There was no Fragile X website or Facebook group then, and just a handful of scientists were studying Fragile X. There was no hope. The US government was spending only $30,000 per year to find a cure!

Katie Clapp, Michael Tranfaglia, MD, and Kathy May founded FRAXA Research Foundation in 1994 — a nonprofit, tax-exempt organization based in Newburyport, Mass. Committed to finding a cure for Fragile X, FRAXA has funded more than $30 million in biomedical research, yielding discoveries that are changing the lives of families coping with Fragile X.

FRAXA is one of the most efficient and effective charities in the world, with management and general expenses under 4 percent. Three Nobel Laureates sit on our volunteer Scientific Advisory Board.