We provide information, support and advice to anyone in the UK affected by any of the Ehlers-Danlos syndromes (EDS). These complex genetic connective tissue disorders have widespread symptoms which can have a big impact on all aspects of life. Symptoms often start in childhood but it can take years to be properly diagnosed. There is no cure. People have to learn how to manage the conditions themselves, which can be daunting. Our vision is to see the time to diagnosis reduce from 10 years to 10 months. Research, high-quality information and support are key. Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.