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Moebius Syndrome Foundation
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Moebius Syndrome Foundation

About us

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, to promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research that advances the diagnosis and treatment of Moebius syndrome and its associated conditions.Since 1994, we have supported the Moebius community by positively impacting the lives of individuals and families living with Moebius syndrome. We have provided educational resources, crucial social opportunities, information, scholarships for continuing education and conferences, and medical travel reimbursement. We have also invested over 1.4 million dollars in research. As our work continues to provide support, resources, and continue the hunt for answers, we gratefully ask for your support.
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March 2025 Grants Round

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