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FSHD Society

About us

Mission & Focus: Dedicated to finding treatments and a cure for FSHD, a common form of muscular dystrophy.
Impact: They have funded over $12 million in research initiatives, driving breakthroughs in gene therapy and clinical trial design.
Trustworthiness: They are highly rated for financial accountability, earning eleven consecutive 4-star ratings from Charity Navigator and BBB Wise Giving accreditation.
Patient Empowerment: They host a "FSHD Navigator" program to assist families with education, support, and access to care.

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Sept 2026 Grants Round

Grant Closes: September 30th

This grant round we are giving $34,000 to the Top #10 USA & Canada Charities. Vote and support the Charities you love today and help them share in grants on 1 Oct 2026 12:00AM.

1st place:

$9,000

#2:

$6,000

#3:

$3,000

#4-#10:

$1,500 each

#11-#20:

$550 each