The OMSLife Foundation is a non-profit organization that works with doctors and caregivers to address the needs of patients inflicted by an ultra-rare disease called Opsoclonus Myoclonus Syndrome (OMS).  This disease primarily impacts pediatric patients under the age of two years old.  Our mission is to raise awareness of OMS, maintain a support network for the caregivers and patients, and fund research for a cure.Since 2010, we have raised awareness of this disease and been advocates for the patients through social media campaigns, conferences, websites, and medical publications.  We have developed a patient registry and continue to grow our programs for the 2,100 patients in 74 countries.