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Pompe Support Network

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Pompe Support Network
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Pompe Support Network

About us

Pompe Support Network is run by the Pompe disease community for the Pompe community.

We: 

  • Influence and support research towards safe, effective, and affordable therapies.
  • Give advice to individuals on non-medical needs and social benefits
  • Advocate for access to novel therapies and medical devices.
  • Organise projects to improve the physical and mental wellbeing of the Pompe community.

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Sept 2025 Grants Round

Grant Closes: September 30th

This grant round we are giving £13,750 to the Top #10 UK and Irish Charities. Vote and support the Charities you love today and help them share in grants on 30 Sep 2025 7:01PM.

1st Place:
£3,000
#2:
£2,500
#3:
£1,000
#4-#10:
£500 each
UK and Irish Charities Leaderboard