FSHD Global Research Foundation was established in 2007 by Australian businessman, philanthropist and sufferer of FSHD, Bill Moss AO. We fund world class medical research and medical education to find treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD). This Foundation does not operate like your average not-for-profit. We allocate 100% of all tax deductible cash donations to current and future medical research investment, grants and education whilst the Foundation’s operations are supported by non-tax deductible sponsorships. With no government support, this unique charity model offers great transparency and accountability in allowing us to fulfill our mission.