The mission of the Bobby Jones Chiari & Syringomyelia Foundation is to advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders.

The Chiari & Syringomyelia Foundation is a non-profit organization that was founded in 2007. In 2019, the family of Bobby Jones and the Chiari & Syringomyelia Foundation partnered to form the Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF), remaining a non-profit organization with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.Bobby Jones CSF has funded over $6 million dollars worth of education and research projects/meetings in its first 13 years and has impacted more than 3.5 million people around the world, who are looking for answers.