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Northern Ireland Rare Disease Partnership

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Northern Ireland Rare Disease Partnership

About us

As the only Rare Disease umbrella group in Northern Ireland we provide support to anyone impacted by a rare condition.

Our front facing hub supports individuals across a wide range of issues and our "Living Well With..." programme connects the community with specialist support, whilst allowing them to connect with each other and develop peer support in this often invisible community.

Overall we advocate, connect, educate and innovate on behalf of the community, working to ensure that 'no-one is disadvantaged due to the rarity of their condition'.

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Sept 2025 Grants Round

Grant Closes: September 30th

This grant round we are giving £13,750 to the Top #10 UK and Irish Charities. Vote and support the Charities you love today and help them share in grants on 30 Sep 2025 7:01PM.

1st Place:

£3,000

#2:

£2,500

#3:

£1,000

#4-#10:

£500 each