Fabry Australia is committed to uniting the Australian Fabry community, by working together to improve the lives of those affected by Fabry Disease.
Fabry Australia incorporated in 1994 and is a registered not-for-profit charity patient organisation to raise awareness and educate others about Fabry Disease, a very rare life-threatening genetic disease.
Fabry Australia is a patient membership organisation made up of members diagnosed with Fabry disease. Fabry Australia encourages and supports research, co-ordinated care, ongoing management and treatment of Fabry disease and supports increased services and facilities to access diagnosis and consultation of those living with Fabry Disease.
Uniting the Australian Fabry community, by working together to improve the lives of those affected by Fabry Disease.
Aims and Objectives
Improve contacts, information and support among people affected by Fabry disease and families, within Australia.
Bring about more public awareness of Fabry Disease.
Improve the medical services to Fabry patients in Australia.
Promote and support research into Fabry Disease.
Share information on Fabry Disease, ongoing management and care as well as available treatments /therapies, to Fabry patients, their supporting carers and related Fabry stakeholders.
Build links with families, clinicians, researchers and support groups, to strengthen and support local knowledge about Fabry disease.
Co-operate and collaborate with other Fabry related groups and individuals interested in rare diseases to promote common interests.
Help raise money in order to support with achieving these aims.