Imagine being told your child has a life-limiting condition.
Imagine being told your child has a life expectancy of only 37 but devastatingly not even half reach their twenties.
Imagine being told you and your husband are carriers of this disease and you gave this to your child.
Imagine being told your child's body is clogged with a mucus that affects every organ in their body, clogging their digestive system and lungs.
Imagine being told your child's pancreas is insufficient.
Imagine being told that it will progressively get worse until it limits their ability to breath and their lungs fail.
Imagine being told they will struggle to do daily things like you or I, without feeling like they have run a marathon every day.
Imagine being told they are unable to interact with other people with their condition, the people who will understand them the most, because of cross infection.
Imagine being told that a common cold could be life-threatening.
Imagine being told they will have to undertake a relentless daily routine of physiotherapy to clear the lungs, take Enzyme capsules with everything they eat to aid digestion, take antibiotics, vitamin and salt supplements, nebuliser inhalation and exercise all before they even start their day.
Imagine looking into your child's eyes, the child who says "mummy can fix anything" and know you can't fix this.
And then imagine being told …..
THERE IS NO CURE.
These are the words of mum of a 3 yo with CF, who was diagnosed a few months ago.
Please donate NOW so that we can continue to assist families like this one.