The Children's Tumour Foundation is the leading non-government not-for-profit organisation dedicated to raising money to fund vital research, awareness and practical support for sufferers of Neurofibromatosis (NF).
Neurofibromatosis (NF) is a genetic disorder with no known cure, but affects 1 in 2,500 people in Australia. It causes neurofibromas (tumours) to grow on nerves throughout the body that can lead to a range of significant health issues, including blindness, cancer, bone abnormalities, deafness, learning difficulties and disfigurement. It is painful, unpredictable and often progressive.
But more importantly, it can affect anyone. In 50% of cases it is not inherited and presents as a spontaneous gene mutation.
It does not discriminate by age, gender, ethnicity, socio-economic status or geographic location.